Posts

25: I have an eating disorder.

Trigger and content warning: eating, food, weight, eating disorder, bingeing, restricting, treatment, recovery.

I have an eating disorder.

It’s taken me a full year to reach a place where I can say that sentence out loud, but now that I have, I feel a tiny piece of its hold on me slowly peeling away. I was diagnosed well over a year ago, but have only started the nitty-gritty of treatment very recently.

So why am I writing about it on my blog?

Well, for one thing, my blog is a place that I can go to write what I’m feeling and it helps me to process things in a constructive way. In a big way, this space has always and will always be for me. A big part of Seeking Sara is unraveling myself and finding out who I am inside. (Alexa, play the Mulan soundtrack!)

But I also want to be open about it because if it weren’t for people in my life being open about their own struggles, treatments, and roads to recovery (including potholes along the way), I never would have been brave enough to seek help. So another massive reason I am being open about this topic is in order to reach out to others to say, “You are not alone.”

The last big reason I am writing about my disordered eating on Seeking Sara is that it is not unrelated to being Autistic. I began subconsciously, (then more consciously, but to my deep shame and suffering) using food, bingeing, restricting, and overall disordered eating to cope with sensory overload, to avoid meltdowns and shutdowns, and to find some sense of control in my life.

Bingeing has become a type of self-harm stim to me. Restricting has become a way to control at least something in my life when I so frequently am overwhelmed by the world around me, not to mention my various health issues and disabilities. But these are not healthy or productive ways to cope. The fact that I can see that now is not a small baby step, but a giant, giant leap toward my long marathon run toward recovery.

One reason I avoided seeking help for so long is the uncanny ability eating disorders have to convince you that they are no big deal. Cycles of denial and acceptance are pretty much guaranteed companions during anyone’s treatment and recovery. I have no doubts that I will struggle back and forth for months–and probably years–to come, but now that I know that and accept that, it makes it easier to cope.

So how did I decide I really did have a problem I needed to address?

I’ve known for a long time, but the final tipping point was a journal assignment my therapist gave to me. The prompt was, “What is your relationship with food like? Write a letter as if it were a real person.” The two images below are my letter to food.

(If you are using a screen reader, please click the images. Alt-text is attached.)
An image of a purple notebook page with text on it. The date reads January 1, 2019. Above the date is a branch with red buds. Text reads, "Dear Food, We need to talk. My relationship with you has been unhealthy for 18 years. It's true that I can't live without you, but sometimes you make me feel like I can't live with you either. You are nourishment, energy, life, necessity. You are addictive, controlling, an unhealthy coping mechanism. I need you. I love you. I hate you. I hate that I need you. You provide me with escape... and yet I can't seem to escape you. The solace you provide is temporary and leaves behind regret, frustration, and a shame.
The second page of the letter reads, "Where you soothe, you also blister. You are a gulp of cool water laced with poison. We need to talk. We have 28 years to evaluate--18 of them troubled. You know I won't ever leave you, but things between us are about to change. I can't leave, but I can loosen your hold on me. I will no longer use you as a crutch that feeds me lies and self-hate. We need to talk. Sara." Beside Sara's name is a graphic of a pen. Under her name is a branch with blossoming red flowers.

Was I shocked by what I wrote? Extremely. What started out as a seemingly-silly therapy homework assignment that I was doing only grudgingly soon pulled emotions up from deep within me as the words cascaded onto the page. What I expected to be a few lines or bullet points in my journal turned into a chilling look at how I really felt. It captured the push-and-pull, back-and-forth, ebb-and-flow love/hate relationship that I’ve been running from since I was 10.

But, like I said: Denial and acceptance are at constant war within me. The next day, I was back to the complacent “I’m fine” attitude. But this time… I had something to look back on. I looked at that letter and felt those same feelings rising up in me again. And suddenly… I couldn’t turn back. I couldn’t go back to believing everything was fine…

But more importantly, I didn’t want to.

So what now?

Well, I’m diving in to treatment head-first with my therapist, continuing to journal (no matter how silly a prompt seems), talking with my loved ones who have eating disorders, doing seemingly small things like asking doctors not to tell me my weight, and reading lots.

I’m cycling back and forth between two books:

The simple yellow cover of Body Respect: What conventional health books get wrong, leave out, and just plain fail to understand about weight. By Linda Bacon and Lucy Aphramor.

1) Body Respect by Linda Bacon, PhD and Lucy Aphramor, PhD and RD (Amazon link here).

The pretty yet simple white cover of Life Without Ed: How one woman declared independence from her eating disorder and how you can too. By Jenni Schaefer.

2) The 10th anniversary edition of Life Without Ed by Jenni Shaefer (Amazon link here).

Cycling between the two has been invaluable to me so far. Body Respect challenges our views of weight, fatness, calorie counting, dieting and more, while Life Without Ed shows me that I am not alone, shows me recovery is possible, and teaches me very practical techniques that I can use.

Getting to Know the Enemy

One of the most important things I have learned from Life Without Ed so far is the concept of naming my eating disorder. By doing this, I can begin to separate out thoughts and impulses that are genuinely mine and which are from the eating disordered part of my brain. It also gives me something to roll my eyes at and tell to go away!

One exercise I did once I named my disorder was to write down all the things it says to me. Once again, what I thought was kind of a silly activity turned into me easily writing a page and a half of terrible things that it says to me–and has done for 18 years. That was another eye-opening moment for me and one that will stick with me throughout treatment and well past recovery.

So there you have it. I have an eating disorder.

But I’m not terrified like I have been for years. I feel anxious. Sometimes I feel powerless. Sometimes I feel like I can’t do it. Occasionally I still feel denial. But now I know how to recognize these feelings and thoughts as products of my eating disorder, not myself.

I have an eating disorder… and I’m going to kick its butt.

A meme with a photograph of a sunny path through the woods. Text reads, "I have an eating disorder. I began subconsciously using food to cope with sensory overload, to avoid meltdowns and shutdowns, and to find some sense of control in my life. As I start down my long path to recovery, I am reaching out to others to say "You are not alone."I have an eating disorder...and I'm going to kick its butt."

[Featured image, image description: A photograph of a sunny path in the woods with shadows from the trees stretching across it. Text reads “Starting Down My Path to Recovery. Seeking Sara.”]

Anniversary Interview 4: My Parents

Anniversary Interviews

Welcome to the last anniversary interview where I interview loved ones about my Autism diagnosis! To read more about why I’m doing the interviews, check out the first interview (linked below).

The interviews will be with: (link opens in new tab)

1) New friends: Anniversary Interview 1: New Friends

2) A high school friend: Anniversary Interview 2: High School Friend

3) My husband: Anniversary Interview 3: My Husband

4) My parents

Then, I will share my reflections on the experience. Enjoy!

Note: These are all people who have been actively trying to learn about Autistic people and how to better interact with and support us. Please be understanding and forgiving of anything like using person-first language (“person with autism”), using functioning labels, or anything of that nature.  All of those being interviewed are being gracious enough to agree to put themselves in a vulnerable situation, and I really appreciate that. Thanks!


Anniversary Interview: Mom and Dad

1) What were some of your initial thoughts when I came to you about the possibility that I might be Autistic?

Dad: Well, my first reaction to the notion was “Huh?”  My only personal experience was with children, and most of them were very “low-functioning” boys with “classic” (that is to say, stereotypical) behaviors.  The “highest functioning” high school boys I knew were still largely non-verbal, avoided eye contact, acted out if they didn’t get what they wanted. Not knowing how autism is often manifest in women, I’m afraid I was kind of dismissive because I didn’t see the stereotypical behaviors I had (wrongly) come to associate with autism.

Mom: My first reaction was, “What?”  I mean, Dad’s describing experiences with my students and children from church.  I know a lot about autism, but in retrospect, it’s mainly with autism that creates very diverse and multiple learning needs, including large communication challenges.  Autism is a spectrum, but I had predominantly studied the more challenging end of the spectrum.

2) Is there anything you would have done differently as a parent had you known?

Dad: This is a difficult question to answer.  I admire who you are as a young woman, your many insights and talents, ability to articulate your thoughts, your witty banter.  So, is this who you would be today if we had raised you differently? I think we went to bat for you at school when we knew about issues, but you kept your experiences of middle-school bullying so private that we didn’t know until you were in college.

Mom and Dad: Maybe we would have found a different way for your piano lessons so they would have engaged you more appropriately/deeply, or would have understood that horseback riding was more like therapeutic riding to you and not just considered it a hobby.

Mom: You always had such unique needs anyway, due to your dietary difficulties, that I think we pretty much dealt with whatever presented itself.  There may have been things that went on internally, but you rarely shared inklings of those things.

3) Looking back at me in my younger years, what kinds of things make more sense to you now?

Dad: You may have a different perspective on this than we do, but we tried to raise our children to lead their own best lives, to speak their minds, to develop their interests and talents as they emerged.  We took you to soccer as long as you were interested, not because we dreamed of you being a pro-soccer player.

We didn’t have plans for you to be a straight-A student, or grow up to be a doctor, or a lawyer, or a pastor, or a teacher.  So we always tried to engage the “you” that was presenting at the time, not some artificial expectation of a “you” we had in our own imaginations. For example, you were frequently around hundreds of people (at church, etc.) and we let you engage — or not — as you wished.

Mom: We’ve always raised our kids to be their individual selves, so any journey of self-discovery is great!

Mom and Dad: Since we were taking our cues from you, we’re not entirely sure that knowing about your diagnosis sheds any more light on things.  At least, we don’t have any memories of thinking, “Why is she doing that?!” that knowing about autism helps us understand in hindsight.

Dad: Maybe I wouldn’t have insisted so much on giving goodbye hugs and kisses to grandparents if I’d known how uncomfortable they made you.

Mom: I wouldn’t have insisted on those anyway.  I’m an introvert, so I understand personal space and value quiet or less chaotic environments.

4) What kind of positive changes have you seen in me in the last year? How have I grown or changed?

Dad: The more you learn about yourself (not only regarding autism but also ADD) the more comfortable you appear to be in your own skin, if I can put it that way.  You understand (and own) that your needs are valid and are perhaps your own best advocate for them, such as wearing noise cancelling headphones in noisy public settings regardless of what others might think.  That’s really great!

A meme with a cityscape background and a white diamond in the middle. The text reads "The world is such a loud place and it seldom stops talking. Wearing noise-cancelling headphones allows me to filter out the assault of noise and focus on your voice. SeekingSara174.wordpress.com." There is a graphic of blue headphones in the middle with a tiny heart between the earphones.

Mom: It seems like you have fewer fibro[myalgia flare] days, and this may be because of paying attention to your sensory needs and knowing to take breaks when you need to.

Dad: Yeah.  You continue to push yourself, but now understand the importance of respecting your internal pacing rather than trying to please some external measure of success.

5) What do you think about Seeking Sara? What kinds of things are still unclear to you? What would you like me to write about in the future?

Mom and Dad: I think we’re both really proud of your blog.  It’s quite an ambitious undertaking, and it’s been great to see not only your personal growth in self-awareness but also the number of others who are gaining insights into their (or their children’s) lives.

Dad:  I’m probably biased, but many blogs seem to be rather shallow (“This is what I’m wearing/eating/doing today…”) but Seeking Sara has real depth to it.

Mom: We’re wondering if there are things you think we could have done differently for you in your childhood if we had known.

Dad: I would like to read more about how music affects you, and if there are ways you use music to accomplish certain tasks that you would find otherwise difficult.  For example, if you get anxious before a doctor’s visit, are there certain types of music you listen to that help you center and stay calm? If you become fearful on a long car ride, does music help you address the fear (not just help pass the time)?  I’m also curious about the observed connection between autism and the microbiome/GI issues, but I don’t know enough about this to frame any specific questions.

Mom: I’d also like to know more about how autism gets diagnosed outside of a school setting, because that’s all I’m familiar with.


A huge thanks to my parents for being so brave and open-minded when doing this interview. I love you guys!

A massive thanks to all the people who agreed to be in the spotlight. You guys rock!

And lastly, a big thanks to everyone who read the interviews!

[image description: A picture of blue flowers with a big white rectangle placed on top of it. Text on a blue box reads, “Interviewing My Parents About My Autistic Self.” The words “Parents” are written in blue while the rest is written in white.]

Anniversary Interview 3: My Husband

Anniversary Interviews

Welcome to the third anniversary interview where I interview loved ones about my Autism diagnosis! To read more about why I’m doing the interviews, check out the first interview (linked below).

The interviews will be with:
(links open in new tab)

1) New friends: Anniversary Interview 1: New Friends

2) A high school friend: Anniversary Interview 2: High School Friend

3) My husband

4) My parents: Anniversary Interview 4: My Parents

Then, I will share my reflections on the experience. Enjoy!

Note: These are all people who have been actively trying to learn about Autistic people and how to better interact with and support us. Please be understanding and forgiving of anything like using person-first language (“person with autism”), using functioning labels, or anything of that nature.  All of those being interviewed are being gracious enough to agree to put themselves in a vulnerable situation, and I really appreciate that. Thanks!


Interviewing My Husband

1) I told you very early on in our friendship that I was probably Autistic. What were your initial thoughts?

My husband: I hadn’t had any close friends who were autistic before, so I didn’t really have any preconceived idea about what to expect. I knew that I liked you and we were getting along well, so I was happy that you were willing to be open with me. I was glad you wanted to help me get to know and understand you better.

2) What’s it like being married to an Autistic person? What are some of the things you love about my being Autistic?

My husband: It just seems like such an integral part of who you are that I couldn’t imagine and wouldn’t want you to be any other way. I try my best to pay attention to when you might be overstimulated or near a meltdown and do what I can to help you avoid or recover from those situations. I definitely find myself noticing strong smells, sights, and sounds that may cause problems for people with sensory issues more than I used to.

I have learned so much about autism and the autistic community and I try to use that knowledge to better myself and be a better ally.  I really appreciate you teaching me about how diverse the autistic community really is in terms of race, gender, sexual orientation, interests, etc. It is vitally important for allies to listen to autistic people’s narratives and stop spreading misconceptions.

3) What kind of positive changes have you seen in me in the last year? How have I grown or changed?

My husband: You’ve been self-advocating and much more willing to stim and be yourself around others. I’m very proud of you and it’s inspirational to see you start being more authentically you.

I now realize how much you have to mask and what a drain it is on you. I can tell what a relief it has been for you to start masking less when you feel comfortable.

4) What do you think about Seeking Sara? What kinds of things are still unclear to you? What would you like me to write about in the future?

My husband: I think it’s amazing and so important for you to share your experiences. I’m so happy you’ve been able to reach and help so many people.

I really liked your podcast with Jeanette [Purkis] and your collaboration with Elyana [Prismatic] and would love to see/hear more collaborations with other bloggers and advocates out there. I’m proud of how hard you work to be an advocate, and are part of such an important movement of autistic people being heard.


A huge thank you to my lovely husband for letting me interview him. I love you!

The next interview will be with my parents!! Stay tuned for that next week.

Thanks for reading!

[image description: A picture of green leaves and a few purple flowers with a big white rectangle placed on top of it. Text on a blue box reads, “Interviewing My Husband About My Autistic Self.” The word “husband” are written in green while the rest is written in white.]

Anniversary Interview 2: High School Friend

Anniversary Interviews

Welcome to the second anniversary interview where I interview loved ones about my Autism diagnosis! To read more about why I’m doing the interviews, check out the first interview (linked below).

The interviews will be with:

1) New friends: Anniversary Interview 1: New Friends (link opens in new tab)

2) A high school friend

3) My husband: Anniversary Interview 3: My Husband

4) My parents: Anniversary Interview 4: My Parents

Then, I will share my reflections on the experience. Enjoy!

Note: These are all people who have been actively trying to learn about Autistic people and how to better interact with and support us. Please be understanding and forgiving of anything like using person-first language (“person with autism”), using functioning labels, or anything of that nature.  All of those being interviewed are being gracious enough to agree to put themselves in a vulnerable situation, and I really appreciate that. Thanks!


High School Friend: “Billy Bob”

Note: My friend has asked to use a fake name in this interview. True to her hilarious nature, she has chosen to be called “Billy Bob.” I want to thank her for stepping up to do this interview and agreeing to be the solo interviewee this round!

1) What were some of your initial thoughts when I told you I might be Autistic?

Billy Bob: When I first heard that you might be Autistic I was kind of surprised and shocked only because I had no idea about most of the things you’ve been going through. Although you did share some things that were happening in your life, I wouldn’t have guessed that Autism could be a factor.

2) You’ve known me for a long time. What did it feel like to find out how much of myself I had (unintentionally) been hiding from you?

Billy Bob: So kind of similar response to the question above with being shocked and surprised. I was also sad to know that you have been hiding this for a while and didn’t share with friends who care about you, but I could also understand why you didn’t share sooner.

I can only imagine how hard it was to be going through this newfound information by yourself or with only a few people aware. I also know it is not easy to open up about personal things. It is hard, scary/nerve-wracking, personal, new to you, and you’re still trying to process and understand it all.

3) Looking back at me in high school years, what kind of things make more sense to you now?

Billy Bob: Well, I know we didn’t talk too much in the beginning of high school and it wasn’t until we were in summer gym classes together that we really started to speak more and become friends.

I always thought it was cool that you were in choir. I admired people who could not only sing, but also have the guts to perform in the school plays and color guard. I think we really bonded when you asked me to read the book you began writing.  Reading and writing were always things you loved to do since I’ve known you and it hasn’t changed because now you’re writing your blog!

So looking back you were still reserved kind of like you are now, but not as much as before. With Autism, I know it must be hard to openly talk to and be around people so being reserved like that makes sense now. You also have always enjoyed music and I think it was a way you could escape from social interactions without even intentionally knowing it.

4) What kind of positive changes have you seen in me in the last year? How have I grown or changed?

Billy Bob: I have seen so many positive changes in you, not only this past year, but since I’ve known you. Since opening up about your Autism you’ve been able to share a part of yourself that you were afraid to share (which, like I said before, you have every right to be nervous!) Like I stated earlier it is not easy to open up about something that is new to you for the fear of being judged, not understood, etc.

I’m so grateful that we’ve become closer every year of our friendship and still continue to become closer. And we’ve learned a lot about each other and our similarities by continuing to talk and by even playing that silly Facebook quiz game (the one where we had to guess each other’s responses lol).

Also having the courage to start a blog to talk to the world about what you are going through is amazing. I don’t think the Sara in high school would have done that so I’m so proud of you for coming so far. And you even spoke on a podcast, which was fantastic and also a new experience you’ve conquered! So keep it up because you’re making wonderful positive changes. 

5) What do you think about Seeking Sara? What kinds of things are still unclear to you? What would you like me to write about in the future?

Billy Bob: So I think you already know this but I think Seeking Sara is wonderful. It is a great way to express all your new adventures and everything that you’ve gone through in this journey of life. It is also a great way to showcase your photography because I really like your pictures.

You’ve been able to explain what you are going through so as of right now there is nothing unclear for me, but if something comes up you know I will ask lol. And keep writing the content that you have because I cannot wait to read more!


A huge, huge thank you to “Billy Bob” for being so gracious and agreeing to do this interview, especially alone! You are fantastic!

The next interview will be with my husband! Stay tuned for that next week.

Thanks for reading!

[image description: A picture of yellow flowers with a big white rectangle placed on top of it. Text on a blue box reads, “Interviewing A High School Friend About My Autistic Self.” The words “New Friends” are written in yellow while the rest is written in white.]

How to Be an Accessibility Ally: Screen Readers

A title card on a purple background. Seeking Sara's orange rose logo is used as an example of where to put the Alt text in a WordPress image with a green arrow. The title reads How to Be an Accessibility Ally Screen Readers and Image Descriptions.

When I first started blogging, I had no idea that there were some simple steps I could take to make my posts much more accessible to my audience. I began adding descriptions to images on WordPress and Twitter and found that it’s really simple. I (naively) figured that most sites must be describing images that way. Then I met my friend Elyana who helped me test run some Voiceover software on my phone and I became painfully aware of how inaccessible most images are on the web.

Elyana has been gracious enough to teach me some basics about creating a more accessible space for visually-impaired and blind people on the internet, and she agreed to do an interview on the subject. I hope that you will take her words to heart and follow some easy steps that make the difference between accessible content and inaccessible content.

Following the interview are some how to visual guides for sighted allies who want to learn how to make their content more accessible. Happy reading!


Accessibility Interview: Elyana Ren

1) What is a screenreader and how does it work?

Elyana: Screen readers give blind and visually-impaired people access to computers, phones, and smart devices. A screen reader is a software program that interfaces with an operating system to render the visual elements (i.e. what’s on screen) into text that is ‘read’ out by a synthesized voice or which can be read on a connected braille display. The screen reader user then uses the keyboard to interact with those elements.

I would like to take this time to point out that, while most screen reader users are blind or deaf-blind, this does not mean that some don’t navigate by using residual vision (with or without magnification software.) Likewise, most screen reader users just use speech to navigate, but many use speech and braille or only braille, in the case of some deaf-blind people. But the concept is still the same: screen readers take what is on screen and present it to the user in a format that is accessible to them.

Note: The following video was created by Sara to give an example of how a screen reader might read text and image descriptions. It is a highly abridged version of what most screen readers can do.

To navigate around a website, for example, the screen reader relies on the HTML code of the page to tell it how to ‘speak’ the elements to the user. Websites tag multi-level headings, links, form fields, buttons, images, and other elements, and screen readers can read that data to the user. If, for example, I were on the Seeking Sara blog, I could hit the letter H and my screen reader will jump from heading to heading, allowing me to scroll through blog titles in the same way someone would scan visually. Once I’ve found the title I was looking for, I can simply use a keystroke to click on it and then read it by either using the arrow keys (like one would in a word document) or using another command to jump from paragraph to paragraph.

The same concept is applicable to screen readers on smartphones and tablets, such as Voiceover for iOS. Basically, when a screen reader is enable on a smartphone, it adds a sort of overlay atop of what is shown on screen so that the user can hear what is under their finger before they click on it. Then, like with letter navigation on the computer, we can use gestures to have the screen reader read out different things, such as headings, words, or characters.

2) What kind of obstacles do you encounter on the internet? What sites are generally inaccessible for you?

Elyana: As mentioned above, screen readers rely on the underlying HTML code of websites to communicate to the user what is on screen so that  the user is able to interact with that content. One of the biggest barriers to accessibility is when things are improperly labeled or not labeled at all. For instance, some sites are completely graphically-driven, meaning that all my screen reader will see and read back to me is a giant image — even if there is text visually on screen. I don’t know enough about web coding to provide exact details on how to fix this, but I have seen enough wonderfully accessible sites to know that it is completely doable.

Another thing that makes navigating sites a little more difficult is videos that autoplay. Not only is it distracting, but screen reader users usually rely on speech output, so it is very difficult to do anything if all I can hear is an ad for the latest game or something. Some web browsers do make it so that you can do a keystroke and it will mute the active tab, but not all of them (as far as I know).

3) What are some of the most accessible sites for you? What do they do that makes the difference for you?

Elyana: The best sites are designed inclusively. This means that they take the time to make sure that everything on their site is accessible not only to screen readers, but also to people with other accessibility needs. This means that everything behind the scenes is properly labeled but also that visual elements, like graphics, background and text contrast, text size, and font choice are also taken into consideration.

4) What is alt-text? What is an image description?

Elyana: Essentially, alt text is a tag someone can add to an image that will make it accessible. I hesitate to call it a caption, because I feel like the trend nowadays is to use captions to comment on a photo rather than describe it. So this is where an image description comes into play. An image description, which is basically what it sounds like: text that describes an image for blind and visually-impaired people, is placed in the alt text field of an image in the HTML code of a website to tell a screen reader to read the description aloud. Otherwise, a screen reader would just read the metadata (i.e. time stamp/file name) of a photo, or simply read it as “image,” neither of which gives us access to said photo.

5) What makes a good image description?

If I’m being honest, image descriptions are so under-used that I get excited when I see any described photo; however, there are certain elements that make a description more effective than others. Some descriptions I have seen are as brief and to the point as “A girl collecting leaves in a wagon,” providing enough of an overview that I can synthesize it with whatever post it is attached to. Some can be longer, such as “A young blonde girl in brightly colored clothing collecting autumn leaves in her shiny red wagon”, which gives me a better understanding of the perspective or mood of the photo. So for me, a good description does not depend upon length as much as it does on helping me understand the aim of the image.

The image in Elyana's example. A young blonde girl in brightly colored clothing collecting autumn leaves in her shiny red wagon.

6) Some people may be hesitant to use certain things in descriptions, such as color. Should people worry about those things? Is there anything you personally don’t want to be in a description?

I can’t speak for everyone, but I don’t want people to feel hesitant or worried about using language that talks about visual things around me — not just in image descriptions but in everyday conversation. For me, color is just another tool I have in my vocabulary of descriptors. So I guess the short answer is: I can’t think of anything I don’t want in a description because anything that can go in a description is just providing me with a deeper understanding of the image.

7) What are some other ways people can make the internet more accessible for visually-impaired and Blind people?

I think one of the things people might not realize is that not all images that are just blocks of text on a colored background are not necessarily accessible to us. There are apps that strip text from pictures, and Facebook has added a layer of accessibility to help parse some memes, but most of them are just an image that screen readers can’t read. One of things that would help is adding a description to those types of images. It can be as simple as typing the text in the body of the post or, in the case of Facebook, pinning a comment to the post in question.

Another thing that is helpful is to capitalize the first letter of every word in a hashtag because screen readers will read each word separately instead of trying to string together all the letters into a mush of phonemes. For example: when my screen reader sees: #allforoneandoneforall” it tries to put all of the vowels together, resulting in me hearing: “alforowndeenodanaforal.” But when the hashtag is written like this: “#AllForOneAndOneForAll,” my screen reader knows to separate out the words, resulting in me hearing “all for one and one for all” as intended.

Final comments from Prismatic:

The last thing I’d like to say is that I appreciate all of Sara’s work to make her content more screen-reader-friendly. I can’t speak for other access needs, or any other blind person, but I am very grateful for creators who go out of their way to ask their audience what they need to be able to participate in their content.

Finally, thank you all for reading this post! I know that it can be a hard thing to remember sometimes, or maybe a hard thing to go back and fix, but really, I just ask that you try to use some of these tips moving forward. I am open for questions or discussion and am happy to provide feedback on your content if you want. I can also provide funny screen reader fails, because they can be pretty awesome!


ABOUT ELYANA

Elyana and her yellow lab guide dog. Yana is laughing with joy as her dog turns to lick her face. Yana wears a green Hufflepuff sweater and a plaid hat.

Elyana Ren, AKA Prismatic, is an unquenchable bookworm and proud Hufflepuff. She is passionate about singing, writing, and quietly changing people’s perceptions of disability. She also enjoys baking, trivia, musical improvisation, and puns. She is an autistic, blind, asexual and aromantic demigirl, who currently lives in Oregon with her guide dog and collection of plushies.

@APrismUncovered  APrismUncovered.wordpress.com


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Jeanette’s Autism Show: Sara Earhart

I recently had the awesome opportunity to be interviewed by Jeanette Purkis–Autistic author, blogger, presenter, and advocate. Their podcast is called Jeanette’s Autism Show.

In this episode, we chatted about blogging, the Autistic community, identity, and more!

Click the link or picture below to be redirected to the podcast! Both open in a new tab. (WordPress isn’t allowing me to embed the podcast here for whatever reason.)

The interview: https://jeanettepurkis.podbean.com/e/jeanettes-autism-show-sara-earhart/

A screenshot image of the podcast player showing Sara's interview. The title reads

Jeanette’s links:

Podcast channel: https://jeanettepurkis.podbean.com
Facebook: https://www.facebook.com/jeanettepurkisbooks/
Blog: https://jeanettepurkis.wordpress.com/
Website: www.jeanettepurkis.com
Twitter: @jeanettepurkis

We hope you’ll enjoy!

[Featured image description: On the lefthand side is a picture of Sara in front of Niagara Falls. Sara has sunglasses on top of her blue hair, noise-cancelling headphones around her neck, and a plushie duck in her hands. On the right is a blue box with the words “Podcast Interview. Talking about Autistic identity and community, blogging, gender, and more! Jeanette’s Autism Show: Sara Earhart” A small drawing of Jeanette is pictured in black and white. They have their eyes closed and are smiling widely while holding a framed picture of their apartment.]

Anniversary Interview 1: New Friends

Anniversary Interviews

November 2018 marks one year since my “official” clinical diagnosis of Autism Spectrum Disorder. When brainstorming what I wanted to write about, I was finding it difficult to come up with anything meaningful or interesting. For the last 6 months of doing Seeking Sara, I’ve been doing 98% of the talking, and I thought it was time to turn to loved ones in my life for their thoughts and insights on my Autistic experience.

The interviews will be with:

1) New friends

2) A high school friend: Anniversary Interview 2: High School Friend

3) My husband: Anniversary Interview 3: My Husband

4) My parents: Anniversary Interview 4: My Parents

Then, I will share my reflections on the experience. Enjoy!

Note: These are all people who have been actively trying to learn about Autistic people and how to better interact with and support us. Please be understanding and forgiving of anything like using person-first language (“person with autism”), using functioning labels, or anything of that nature.  All of those being interviewed are being gracious enough to agree to put themselves in a vulnerable situation, and I really appreciate that. Thanks!


New Friends: Ivana and Nicole

1) What were some of your initial thoughts when I told you I’m Autistic?

Ivana: I don’t think you told me directly. I think I read it on your blog. To be honest I didn’t think much of it. I know other people with autism and know about it. I know there is a huge range as far as traits go. I was very impressed by how open you are and that you are using your experiences to help out and reach out to other people. I also thought you were a great writer!

Nicole: Initially I was surprised and curious to know more about your diagnosis.  As someone who works with children, I’ve had some experience with children who are on the autism spectrum, but these interactions were typically with youth who are “low functioning” or fall on the more “severe end” of the spectrum. My Mom also has worked for several years as a classroom aide for elementary students with IEPs, very often those with “severe autism” included. You didn’t seem to meet my perception of what autism looked like, hence the surprise and curiosity! I don’t think it would have ever occurred to me that were an autistic person if you hadn’t told me.

2) How has your perception of me changed since I told you? What do you notice about me now?

Ivana: I did notice sometimes when we have been talking you might look away and focus on something else. I assumed that helped you when there might be too much stimulation in the environment. I also noticed how you sat at the end of the table at the [wedding] rehearsal dinner, because I know that’s something I do as well to cope with my anxiety. 😊

Nicole: I don’t think my perception changed all that much, but that is at least partially due to the fact that I didn’t know you for very long before I knew you were autistic. What I notice most may be your behavior in social interactions— your comfort level and engagement with others can vary and if you seem to be taking some alone time, I respect that. Reading your post about small talk and eye contact was really interesting to me and something I keep in mind if we may be socializing together.

3) Is there anything about me that made more sense to you after I told you?

Ivana: I think I got a better understanding why you and I connected so easily & quickly. I have social issues that I struggle with.

Nicole: As I mentioned before, since I didn’t know you very well before I knew you were autistic, I don’t think I had the opportunity to really notice any differences or reflect on behaviors.

4) What kind of positive changes have you seen in me in the last year? How have I grown or changed?

Ivana: I don’t think I’ve known you long enough to really answer this, but I know as we’ve gotten to know each other better you have opened up to me much more. Every time we see each other I feel like I know you more.

Nicole: You’ve become more confident in yourself! You have grown more comfortable in your communication with others and in sharing your personal stories and experiences, both in person and via the blog (of course).

5) What do you think of Seeking Sara? What kinds of things are still unclear to you? What would you like me to write about in the future?

Ivana: I think your blog is wonderful and I know I’ve learned things from reading it. I’m not sure if you’ve already written about this but I’d like to know more about how you started writing. Did you already have a blog before your diagnosis? What really makes you want to share your experiences? Were you hesitant about sharing in anyway?

Nicole: I think Seeking Sara is wonderful and applaud your bravery to share so much about yourself with others! You have really opened my eyes to the variety of experiences and struggles those with autism can have on a daily basis, and I’ve gained a better understanding of what it means to be an autistic adult especially. Your post about sensory issues with foods specifically really made me think about how such a basic task such as eating can be a challenge.

I truly appreciate that your writing makes me think about many everyday experiences that I take for granted, or don’t think about at all. I’d love to hear more advice for how I can be helpful and supportive to those with autism, as well as more about your personal experiences from day to day.


A huge, huge thank you to Ivana and Nicole for being so gracious and agreeing to do this interview. You’re both awesome!!

The next interview will be with one of my high school friends.

Thanks for reading!

[image description: A picture of red tulips with a big white rectangle placed on top of it. Text on a blue box reads, “Interviewing My New Friends About My Autistic Self.” The words “New Friends” are written in red while the rest is written in white.]